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Title: Quality of Life in Hidradenitis Suppurativa: validation of the HSQoL-24
Authors: Marrón, Servando E. ORCID SCOPUSID
Tomás-Aragonés, Lucía ORCID SCOPUSID
Goñi-Navarro, Ana ORCID SCOPUSID
Vilarrasa Rull, Eva SCOPUSID
Díaz-Díaz, Rosa María ORCID SCOPUSID
García-Latasa de Araníbar, Francisco Javier SCOPUSID
Campos Ródenas, Ricardo Pereira SCOPUSID
Fuentelsaz-Del-Barrio, Victoria SCOPUSID
Gilaberte-Calzada, Yolanda ORCID SCOPUSID
Gracia-Cazaña, Tamara SCOPUSID
Morales-Callaghan, Ana María SCOPUSID
Ros-Abarca, Sandra SCOPUSID
Madrid Álvarez, María Blanca SCOPUSID
Keywords: Hidradenitis suppurativa; Quality of life; Patient-reported outcome measure; Psychometrics; Validation
Issue Date: 2021
Publisher: Acta Dermato-Venereologica
Abstract: To date, there are no disease-specific instruments in Spanish to assess quality of life of patients with hidradenitis suppurativa. A multicentre study was previously carried out in Spain between 2016 and 2017 to develop the Hidradenitis Suppurativa Quality of Life-24 (HSQoL-24), a disease-specific questionnaire to assess quality of life in patients with hidradenitis suppurativa. The objectiv es of this study are to revalidate the HSQoL-24 in Spanish with a larger sample of patients, and to present the English version. In this multi centre study in Spain, patients with hidradenitis suppurativa completed the HSQoL-24, the Dermatology Life Quality Index and the Skindex-29. The Hurley staging system was used to assess the severity of the disease. Validation of the questionnaire was carried out in 130 patients, of whom 75 (57.7%) were women. This study demonstrates adequate values of reliability and validity of the HSQoL-24, confirming the previous test re-test validation and making this questionnaire one of wide clinical validity in terms of results perceived by patients.
ISSN: 0001-5555
Appears in Collections:Artículos de revistas

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