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Title: | Quality of Life in Hidradenitis Suppurativa: validation of the HSQoL-24 |
Authors: | Marrón, Servando E.
Gómez Barrera, Manuel Tomás-Aragonés, Lucía Goñi-Navarro, Ana Vilarrasa Rull, Eva Díaz-Díaz, Rosa María García-Latasa de Araníbar, Francisco Javier Campos Ródenas, Ricardo Pereira Fuentelsaz-Del-Barrio, Victoria Gilaberte-Calzada, Yolanda Gracia-Cazaña, Tamara Morales-Callaghan, Ana María Ros-Abarca, Sandra Madrid Álvarez, María Blanca Puig, Lluís L. |
Keywords: | Hidradenitis suppurativa; Quality of life; Patient-reported outcome measure; Psychometrics; Validation |
Issue Date: | 2021 |
Publisher: | Acta Dermato-Venereologica |
Abstract: | To date, there are no disease-specific instruments in Spanish to assess quality of life of patients with hidradenitis suppurativa. A multicentre study was previously carried out in Spain between 2016 and 2017 to develop the Hidradenitis Suppurativa Quality of Life-24 (HSQoL-24), a disease-specific questionnaire to assess quality of life in patients with hidradenitis suppurativa. The objectiv es of this study are to revalidate the HSQoL-24 in Spanish with a larger sample of patients, and to present the English version. In this multi centre study in Spain, patients with hidradenitis suppurativa completed the HSQoL-24, the Dermatology Life Quality Index and the Skindex-29. The Hurley staging system was used to assess the severity of the disease. Validation of the questionnaire was carried out in 130 patients, of whom 75 (57.7%) were women. This study demonstrates adequate values of reliability and validity of the HSQoL-24, confirming the previous test re-test validation and making this questionnaire one of wide clinical validity in terms of results perceived by patients. |
URI: | https://repositorio.usj.es/handle/123456789/711 |
ISSN: | 0001-5555 |
Appears in Collections: | Artículos de revistas |
Files in This Item:
File | Description | Size | Format | |
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Quality of Life in Hidradenitis Suppurativa validation of the HSQoL-24.pdf | 524,42 kB | Adobe PDF | View/Open |
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